Friday, October 3, 2008

Are you sitting down???

Ta-da...we have a discharge date...Monday, October 6th! If everything goes as planned, that is. And of course it will. I'm joining my boys on Sunday Oct 5th, so I will be able to escort Donovan to his home for the next couple of months. Can't wait. How amazing is this news...? well, let's remember that Donovan's recovery was "supposed" to be proportionate to the condition he was in when he went into surgery...not good at all...he is continuing to defy all the odds! Being discharged 23 days post-surgery is astounding! It is best-case-scenario!

While we are speaking of good news...I like numbers. Take 7 for instance. For a white cell count? I'd call that perfectly normal. I've been waiting to hear that kind of number. It means no infection. How's 5 p.m.? That's the time of day it was before Donovan required pain medication today. Let's remember not 3 weeks ago his chest was opened much like the hood of a car....How's 50% ? That the improvement in even more of his strength exercises as measured by the machines in the physio gym....

A good day once again, and I hope you're not getting tired of hearing that, because I intend to keep on chronicling good days on this journey of hope. I'm so happy to hear that Laurier and Donovan took advantage of our lovely weather and had supper together at a picnic table outside the hospital. You facebookers may also note that Donovan changed his "status" so he's up and at 'em on the computer too. His friend Chantal is visiting for the weekend, thanks girlie, you're awesome!

On the medical front, there was teaching from dietary, and it was decided to discontinue Donovan's nightly tube feedings as there is risk of reflux entering his shiny, new lungs and causing damage there. We wouldn't want that! This means he'll have to consume tons of food during the day to help gain back lost weight, and to keep weight on, something Donovan's not been terribly good at over the years. However, he'll no longer be using so many calories struggling to breathe and fight infection. So, we'll see how this goes....

There's also been teaching on measuring blood sugar and administering insuling. It remains to be seen if Donovan will continue to be diabetic once he recovers. If he is, we'll just deal with it. Small price to pay for a new life!

Last night Donovan slept great, and he also had a good nap today. I guess they've got that insomnia side-effect under control. They woke him to go to a shower, get this, a stand-up shower! Yesterday & today! That's progress...no chair in the shower.

And I have had a wonderful week at home. The days have slipped by as I've shared our miracle with so many friends and family. I've had 3 lunch dates (no problem gaining back lost pounds here) and even gone back to preschool to visit the little ones. I've missed work so much! Great to see you, everyone!

I've also been overwhelmed by the generosity of my community. The pediatric ward here, which has been home to Donovan about a hundred times over the years, (he's been a patient many times since 'graduating' officially from pediatrics) took up a collection among staff, and presented me with a beautiful card and cheque. The level 3 nurses at the Victoria hospital are some of the most caring, dedicated professionals I've met in our multi-hospital journey with our son. They are angels and all deserve raise!

A co-worker donated her hours of work subbing for me and gave me cheque as well. I won't mention her name, but she is a truly special person, and I am so touched! Have I told you I have the best job in the world? and Laurie, you are the world's best boss. Your support means everything, as do your hugs! Thank you to Lynda and Debbie D. for lovely gifts also, you are incredibly thoughtful...and I'm thoroughly spoiled! My garden and plants are green and flowering and looking lovely. My lawn is cared for! my tomatoes are canned! You are all angels and I thank you from the bottom of my heart. Did you know Park Avenue is the best place to live? (Better than that other more well-known Park Ave)!

I also want to mention those who have simply listened as we have told and re-told both the scary and joyful moments on this journey. It's been so similar to a new mom who has the need to express the profound emotions endured during labor and birth. For me, both writing and talking have helped so much to work through the incredible scope of emotions I've undergone in the last month. Thanks for reading, thanks for being there...you are more than therapists!

More heart-warming news...Tonight Stephen's soccer team walked the red carpet before our local Raiders hockey game, and Stephen as well as a girl from the other team heading to Nationals were chosen to drop the puck before the game. I was so proud! When I mentioned how thrilling this was, coach Clark said "It's for Donovan" Awww, Thanks Team!!!

It's been a rocky road, but every gesture of kindness has been a hand up when we've fallen.

Here's hugs to all....until next time,

Beth

7 comments:

Tony McFadden said...

Fan-bloody-tastic news on the discharge date (And yes, I was sitting down.)

Donovan, this is for you:

Your mom wrote "This means he'll have to consume tons of food during the day to help gain back lost weight, and to keep weight on..."

Do it right Donovan.

Plenty of steak, with pasta (butter and parmesan cheese on top) followed by a banana split.

Three times a day.

Don't forget the bananas for snacks in between meals, with the occasional Wendy's hamburger (don't have those in Australia -- one of the things I miss living here).

You'll do fine

Okay, back to Beth.

Best of luck with the return home and also with Stephen's soccer. My 13 year old is doing rep trials in a couple of weeks for a couple of quality teams and is getting quite excited about moving up from club football/soccer.

NEEDLEWORKS FABRICS AND CLASSES said...

So wonderful to hear that you get to go home. I look forward to seeing the blessings that will continue as Donovan flourishes with his new lungs.

Jerry

Sharon Terrio said...

Awesome News.

Always in our prayers.

Sharon Terrio sharonterrio@yahoo.ca

Unknown said...

Good thing I was Beth, this news brought tears of joy to my eyes and I can barely see to type. What an awesome God we serve and what awesome works of His Hands we are privileged to witness. I am around if you have time for a call or visit. Hint! Hint! :)

Love, DEB

Petra said...

I'll keep this simple ...in the amazing words of secret agent Austin Powers...."Its all good Baaaby!!!"
Seriously we truly rejoice with you for this undeniable miracle.
Gregor

ps...I don't know what stories you heard about an uncle behaving badly at Jay's wedding, but I can asure you it wasn't me!!

Unknown said...

What a mighty God we serve...

Beth it's been great to have you home, we've all missed you so much and now soon Dono will be joining you, How awesome is that!

I am packing to go see Donovan this afternoon and I can't beleive it was only 22 days ago God intervened with this mighty miracle! He's come so far so fast, Thank you Lord.

I can't stop the tears of joy from coming when I re-tell this amazing story to anyone who will listen!

Dono we all love you so much
I can't wait to see you
Auntie Lennie

Unknown said...

Donovan...this is truly a miracle that you are going home tomorrow, Monday. God is so good!! I'm off to national Pioneer Camp meetings tomorrow until Thursday so will catch up when I return. We continue to pray as you gain more strength and put on the pounds!! God bless you Donovan...and all of your family!
Enid