Hi Everyone,
As mentioned a few days ago, Donovan's Grandma, my mom Pearl fell and broke her hip last Wed. The repair surgery was a success, and she was only in the ICU a day. Yesterday she began to cough, and today she was in a great amount of respiratory distress. It was very distressing to me to see her struggle to breathe in much the same manner Donovan struggled just a few weeks ago, prior to transplant. (He, by the way, continues to breathe very easily, thank God!).
The doctor is trying to unravel mom's medical mysteries, and to discover why she suddenly appears to be having congestive heart failure. They removed a great amount of fluid from her lungs this evening, and she at last report was able to rest. Could I humbly ask you to pray for my mom, that her distress would be aleviated and that she recover fully from this episode and live to enjoy her repaired hip? It does appear to be healing, and prior to all the breathing trouble she was mobilizing with much reduced pain. Thanks everyone!
I have a ticket booked to fly back to Edmonton this Saturday with Laurier's mom. I don't feel very good about leaving with mom this frail. Stephen was to join us with Amy the week following. It would be so good to be together again! I need wisdom as to whether or not I should leave.
Laurier and Donovan were able to travel to Katie & Kurtis's house in Leduc for supper today. Also check out their recent post to the blog. They're doing well, and Donovan reports increased weight challenges in the gym. Did I also mention his weight gain? Up 7 pounds from his hospital discharge weight! Awesome! In the midst of my challenges with mom, we still have so much to be thankful for.
I must admit that I'm feeling a little worn out and discouraged and torn in a few directions. It would be wonderful to have mom get better and be able to carry on with plans to go to Edmonton.
In the midst of this, I'm so thankful that we know God is faithful(we do know this!!!) and able to "supply all our needs, according to His riches in glory."
So tonight, I will trust Him for sleep, for healing, and a fresh supply of grace for tomorrow....
Holding the hand of the One who holds the future,
Beth
Tuesday, October 28, 2008
Thank you! - A post from Donovan and Laurier -
Thank You! - A post from Donovan and Laurier -
So things are settling down, over a month post transplant and we have finally settled into a daily routine "at home" here in Edmonton. Looking back through this whole process it is obvious that my family and I could not have made this journey alone. We could not have done it without the grace of God or His blessing of your friendship.
Now that things have settled down I know that most people won't be checking "the blog" so religiously, so I would like to send out thank yous on behalf of my family and I. There are so many people to thank for many different reasons, and I know that there will be some people left out unintentionally, so my apologies in advance!
In the beginning of this journey we were so thankful to have friends and family at our side. As we continued on through the many peaks and valleys, the support grew and grew and grew. It has been overwhelming to experience this amount of generosity. I have to admit that this support has brought tears of joy and still does when we reflect on everything that has been done for us this past few months as well as in years gone by.
My coworkers at Sears in Prince Albert,
You have proven you are all more than just co-workers with the fund raising efforts and thoughtful gifts. I am still amazed that even though it has been over a year since I last worked along side you, you have kept me a part of the Sears family! Thank you so much for the photo frame. I have already loaded some of my photography on it, and it looks great. Thank you so much for all the work of the bake sales. The money raised will go toward expenses in Edmonton. Thank you from the bottom of my heart! I will make sure to stop in and visit as soon as I get back to Prince Albert.
To the Prince Albert Alliance Church and Mom's Morning Out group and Cross Roads Pentecostal Church,
We would like to thank you for all your prayers, encouragement, emotional and financial support. Thank you for being a church that actively cares. Your prayers have carried us through the most difficult times and are still being felt. We were astounded by the generosity of the congregation. Your financial gifts will assist us through our stay here and are providing us with a peace of mind during our time here. Thank you so very much!
To The Most Wonderful Pediatric Staff at Vic. Hospital,
Thank you for your financial gift, and all your encouragement. Even though I am no longer in your care, it is truly touching to know that you still care and think of me. There is so much more to thank you for, your hospitality, your actions which were above the call of duty, your unmatched bedside manner, all which made long hospital stays bearable. You are terrific nurses, and your care saw me through many crisis. It is due to you that I was able to stay as healthy as I did for many years, and able to continue to live life as a child and teen as normally as I could. Thank you so much!
P.S thanks for overlooking our rule breaking habits : )
Saskatoon University Hospital Staff,
I would like to thank you for your kindness and care during my failing health. Thank you for helping stabilize me so that I could make the trip to Edmonton for my new lungs (which are great by the way)!
To the greatest soccer moms and dads,
We greatly appreciate you guys taking Stephen under your wing this past season. It was good to know while we were away, you made it possible for him to have the opportunity to take part in a once in a lifetime opportunity. Thank you also for your help with our finances here in Edmonton, it's truly incredible that besides helping Stephen you have also reached out to us here in Edmonton. We really appreciate all you have done!
To Friends and Family,
We would like to thank everyone for the time and energy you have generously contributed. We would like to specifically thank you for all the prayers, encouraging cards, the uplifting visits in the hospital (I know it was a long trip for many of you!). We also appreciated all the assistance with looking after our needs back home. Your love and support have made all the difference.
To the Poetker family
Thank you for looking after Stephen while we have been here in Edmonton. Thank you for giving him a loving home away from home as well as a family. Even through the troubling times we had peace of mind that Stephen was in good hands.
To Elizabeth and Sandy and Laurie E.,
Thank you for taking care of my precious Scout! We know he appreciated the attention and exercise, and he'll never forget all your love. You've made a friend for life!
Thank you Verla,
Thank you for opening your home to us, we are so glad to have been blessed with a friend like you. We thank you for your prayers, your friendship and a home away from home.
P.S Even though we moved in like cockroaches! - Beth
To Prince Albert Lydale Staff and Wee Care Preschool,
Thank you for your understanding and compassion in allowing our family to be together during this crisis and recovery period. This leave of absence has allowed us to focus on family needs.
My new lungs are still working great and I credit this to all your love, support and prayers. My days are very busy, each morning is filled with physio, clinics, labs, pulmonary, occupational therapy and nutritional/diabetes training. I'm still gaining both weight and strength and I am working very hard to achieving my goal of being home for christmas! I look forward to seeing everyone once again, this time with no tubes attached!
God Bless,
Donovan + Laurier
So things are settling down, over a month post transplant and we have finally settled into a daily routine "at home" here in Edmonton. Looking back through this whole process it is obvious that my family and I could not have made this journey alone. We could not have done it without the grace of God or His blessing of your friendship.
Now that things have settled down I know that most people won't be checking "the blog" so religiously, so I would like to send out thank yous on behalf of my family and I. There are so many people to thank for many different reasons, and I know that there will be some people left out unintentionally, so my apologies in advance!
In the beginning of this journey we were so thankful to have friends and family at our side. As we continued on through the many peaks and valleys, the support grew and grew and grew. It has been overwhelming to experience this amount of generosity. I have to admit that this support has brought tears of joy and still does when we reflect on everything that has been done for us this past few months as well as in years gone by.
My coworkers at Sears in Prince Albert,
You have proven you are all more than just co-workers with the fund raising efforts and thoughtful gifts. I am still amazed that even though it has been over a year since I last worked along side you, you have kept me a part of the Sears family! Thank you so much for the photo frame. I have already loaded some of my photography on it, and it looks great. Thank you so much for all the work of the bake sales. The money raised will go toward expenses in Edmonton. Thank you from the bottom of my heart! I will make sure to stop in and visit as soon as I get back to Prince Albert.
To the Prince Albert Alliance Church and Mom's Morning Out group and Cross Roads Pentecostal Church,
We would like to thank you for all your prayers, encouragement, emotional and financial support. Thank you for being a church that actively cares. Your prayers have carried us through the most difficult times and are still being felt. We were astounded by the generosity of the congregation. Your financial gifts will assist us through our stay here and are providing us with a peace of mind during our time here. Thank you so very much!
To The Most Wonderful Pediatric Staff at Vic. Hospital,
Thank you for your financial gift, and all your encouragement. Even though I am no longer in your care, it is truly touching to know that you still care and think of me. There is so much more to thank you for, your hospitality, your actions which were above the call of duty, your unmatched bedside manner, all which made long hospital stays bearable. You are terrific nurses, and your care saw me through many crisis. It is due to you that I was able to stay as healthy as I did for many years, and able to continue to live life as a child and teen as normally as I could. Thank you so much!
P.S thanks for overlooking our rule breaking habits : )
Saskatoon University Hospital Staff,
I would like to thank you for your kindness and care during my failing health. Thank you for helping stabilize me so that I could make the trip to Edmonton for my new lungs (which are great by the way)!
To the greatest soccer moms and dads,
We greatly appreciate you guys taking Stephen under your wing this past season. It was good to know while we were away, you made it possible for him to have the opportunity to take part in a once in a lifetime opportunity. Thank you also for your help with our finances here in Edmonton, it's truly incredible that besides helping Stephen you have also reached out to us here in Edmonton. We really appreciate all you have done!
To Friends and Family,
We would like to thank everyone for the time and energy you have generously contributed. We would like to specifically thank you for all the prayers, encouraging cards, the uplifting visits in the hospital (I know it was a long trip for many of you!). We also appreciated all the assistance with looking after our needs back home. Your love and support have made all the difference.
To the Poetker family
Thank you for looking after Stephen while we have been here in Edmonton. Thank you for giving him a loving home away from home as well as a family. Even through the troubling times we had peace of mind that Stephen was in good hands.
To Elizabeth and Sandy and Laurie E.,
Thank you for taking care of my precious Scout! We know he appreciated the attention and exercise, and he'll never forget all your love. You've made a friend for life!
Thank you Verla,
Thank you for opening your home to us, we are so glad to have been blessed with a friend like you. We thank you for your prayers, your friendship and a home away from home.
P.S Even though we moved in like cockroaches! - Beth
To Prince Albert Lydale Staff and Wee Care Preschool,
Thank you for your understanding and compassion in allowing our family to be together during this crisis and recovery period. This leave of absence has allowed us to focus on family needs.
My new lungs are still working great and I credit this to all your love, support and prayers. My days are very busy, each morning is filled with physio, clinics, labs, pulmonary, occupational therapy and nutritional/diabetes training. I'm still gaining both weight and strength and I am working very hard to achieving my goal of being home for christmas! I look forward to seeing everyone once again, this time with no tubes attached!
God Bless,
Donovan + Laurier
Thursday, October 23, 2008
The ICU....again.....
NO, it's not Donovan. But I did spend a good chunk of the day in the ICU, here in Prince Albert.
I was awakened in the early hours of the morning yesterday, one of those heart-stopping phone calls I love to hate. It was my 83 yr. old mother's care home, telling me she had fallen and was being transported to hospital via ambulance. A good deal of pain and one x-ray later and the diagnosis of a broken left hip was announced. She is an anasthetic risk, and quite frail, so we were all concerned, and spent the day sorting out options and keeping her well medicated. It was decided to operate this morning using a spinal anasthetic, and then move her to the ICU for observation until tomorrow.
So I spent a good deal of last night in a narrow vinyl recliner, too much of me and too little chair, with my seriously doped-up and pain ridden mom calling out to long-gone family members at short intervals....hmmm, the stuff nightmares are made of! My sister spelled me off at 3 am, and I came home to attemp some real sleep before seeing Stephen off to school today, and , you guessed it, another soccer tournament! This one in Weyburn, Sk. and I'm so glad I'm not going along. The days of me being excited about a six-plus hour trip on an old yellow school bus are long gone!!!
Anyway, the surgery was quite successful, and mom is now comfortable (mostly) with pharmaceutical aid. She'll be moved to the surgery ward tomorrow. We will have to see what the plans are for her longer term, and if she'll be able to return to her care home.
On the lighter side, she is quite funny between the effects of narcotics, and her very poor hearing. Example: Mom: Beth, what are you doing.
Me: sending Laurier a text message.
Mom: Sex message! Why are you sending him a sex messages???
You just gotta laugh!!! So, you never know what life's going to throw your way next. I was quite happy at the thought of never seeing the inside of the ICU again, ever!!!
Just got off Skype with Donovan, Laurier & my blossoming daughter Katie, who tells me she & the world's cutest grandbaby are doing fine. Donovan also continues to do well. He is now cutting back on insulin, seeing if his tuckered-out pancreas can begin to kick in at all. He'll monitor his morning sugar, and if it rises too much he'll have to increase his needles again. How about we all pray that this is the beginning of the end of his diabetes? Thank you!
As well, he bought home the pulmonary function testing device, which will enable him to do daily flows. The words "every day for the rest of your life" were used in a very serious tone, along with "patient compliance" etc. The docs really, really want to see these lungs last the distance, and we intend to do all we can at this end. Did I mention Donny's "flows" are now 74%? We haven't seen those kind of numbers since he was about 10 yrs. old! Awesome!
One more blessing for us all to ponder. Our newly transplanted friend Lauren is out of the ICU. Just over a week along for her. I'm so very happy! Now let's all say a few prayers for Kristen to also get her lungs. Thanks everyone!
By the way, did I mention that Donovan is getting slightly "pudgy"....and that his cheeks are the nicest rosy shade? We have so very much to be thankful for. I'm off to try and get some seriously needed sleep, and gear up for another day at the hospital with mom. Have a great night all!
Beth
I was awakened in the early hours of the morning yesterday, one of those heart-stopping phone calls I love to hate. It was my 83 yr. old mother's care home, telling me she had fallen and was being transported to hospital via ambulance. A good deal of pain and one x-ray later and the diagnosis of a broken left hip was announced. She is an anasthetic risk, and quite frail, so we were all concerned, and spent the day sorting out options and keeping her well medicated. It was decided to operate this morning using a spinal anasthetic, and then move her to the ICU for observation until tomorrow.
So I spent a good deal of last night in a narrow vinyl recliner, too much of me and too little chair, with my seriously doped-up and pain ridden mom calling out to long-gone family members at short intervals....hmmm, the stuff nightmares are made of! My sister spelled me off at 3 am, and I came home to attemp some real sleep before seeing Stephen off to school today, and , you guessed it, another soccer tournament! This one in Weyburn, Sk. and I'm so glad I'm not going along. The days of me being excited about a six-plus hour trip on an old yellow school bus are long gone!!!
Anyway, the surgery was quite successful, and mom is now comfortable (mostly) with pharmaceutical aid. She'll be moved to the surgery ward tomorrow. We will have to see what the plans are for her longer term, and if she'll be able to return to her care home.
On the lighter side, she is quite funny between the effects of narcotics, and her very poor hearing. Example: Mom: Beth, what are you doing.
Me: sending Laurier a text message.
Mom: Sex message! Why are you sending him a sex messages???
You just gotta laugh!!! So, you never know what life's going to throw your way next. I was quite happy at the thought of never seeing the inside of the ICU again, ever!!!
Just got off Skype with Donovan, Laurier & my blossoming daughter Katie, who tells me she & the world's cutest grandbaby are doing fine. Donovan also continues to do well. He is now cutting back on insulin, seeing if his tuckered-out pancreas can begin to kick in at all. He'll monitor his morning sugar, and if it rises too much he'll have to increase his needles again. How about we all pray that this is the beginning of the end of his diabetes? Thank you!
As well, he bought home the pulmonary function testing device, which will enable him to do daily flows. The words "every day for the rest of your life" were used in a very serious tone, along with "patient compliance" etc. The docs really, really want to see these lungs last the distance, and we intend to do all we can at this end. Did I mention Donny's "flows" are now 74%? We haven't seen those kind of numbers since he was about 10 yrs. old! Awesome!
One more blessing for us all to ponder. Our newly transplanted friend Lauren is out of the ICU. Just over a week along for her. I'm so very happy! Now let's all say a few prayers for Kristen to also get her lungs. Thanks everyone!
By the way, did I mention that Donovan is getting slightly "pudgy"....and that his cheeks are the nicest rosy shade? We have so very much to be thankful for. I'm off to try and get some seriously needed sleep, and gear up for another day at the hospital with mom. Have a great night all!
Beth
Sunday, October 19, 2008
The Heart of the matter...
A beautiful clear & chilly weekend in Prince Albert.
Stephen's school soccer team (Carlton) returned from their Swift Current regional tournament sporting shiny gold medals, which means they will go on to provincials in Weyburn next weekend. The challenge now remains fitting a little time with the books in between soccer games!
I kept busy this weekend attending an Arrogant Worms concert with friends on Friday night...hilarious comedy & music. So good to laugh! Got the carrots dug, planted the rest of the bulbs, and am still thinking about putting away the hose...and fitting a car in the garage. Really not into scraping windows.....
Still keeping in touch with Laurier & Donovan via Skype, but I no longer try to give them beverages or feed them....(see last post). Donovan is still making gains in the healing direction...he has officially ditched the walker and seldom uses the cane. No more chair in the shower, or rails around the toilet...and he managed to gain a couple of pounds last week as well. He has officially moved downstairs to the suite in the basement of the house where they are staying, as stairs are no longer a problem. Wow!!! It just keeps getting better!!! I'm really counting on the docs discharging him from rehab by Christmas.
One little matter for prayer would be an issue with Donovan's heart. As mentioned in an earlier post, his resting pulse is far too rapid, so a med was begun to slow it down. Donovan continues however to have episodes of his heart rate speeding up, coupled with flushes and a fainty feeling. A little concerning. Some test were done, but so far nothing shows up. Docs think his heart could be irritated by stitches where the connections were made in transplant, but often this shows up earlier in healing, so they are a little puzzled. Let's just ask God to sort this out for us, He's done a great job of everything else!!!
And.....our friend Lauren, the 18 yr. old who was transplanted last week is doing well! I believe her respirator was to be removed this weekend. We are so thankful for her lungs, and to see another young person have her well-deserved chance at life!!! Please remember our other friend Kristen in your prayers, as she awaits her lungs. She has been on the list since spring, and waiting can be so tedious. What a wonderful early Christmas gift a brand-new set of "breathers" would be!!! Will keep you posted on her progress.
Donovan tells me he's working on another post, so keep on checking the blog. I know everyone is far more interested in hearing from the horse's mouth, as it were. I'll also try to get a few more pics posted.
God Bless,
Beth
Stephen's school soccer team (Carlton) returned from their Swift Current regional tournament sporting shiny gold medals, which means they will go on to provincials in Weyburn next weekend. The challenge now remains fitting a little time with the books in between soccer games!
I kept busy this weekend attending an Arrogant Worms concert with friends on Friday night...hilarious comedy & music. So good to laugh! Got the carrots dug, planted the rest of the bulbs, and am still thinking about putting away the hose...and fitting a car in the garage. Really not into scraping windows.....
Still keeping in touch with Laurier & Donovan via Skype, but I no longer try to give them beverages or feed them....(see last post). Donovan is still making gains in the healing direction...he has officially ditched the walker and seldom uses the cane. No more chair in the shower, or rails around the toilet...and he managed to gain a couple of pounds last week as well. He has officially moved downstairs to the suite in the basement of the house where they are staying, as stairs are no longer a problem. Wow!!! It just keeps getting better!!! I'm really counting on the docs discharging him from rehab by Christmas.
One little matter for prayer would be an issue with Donovan's heart. As mentioned in an earlier post, his resting pulse is far too rapid, so a med was begun to slow it down. Donovan continues however to have episodes of his heart rate speeding up, coupled with flushes and a fainty feeling. A little concerning. Some test were done, but so far nothing shows up. Docs think his heart could be irritated by stitches where the connections were made in transplant, but often this shows up earlier in healing, so they are a little puzzled. Let's just ask God to sort this out for us, He's done a great job of everything else!!!
And.....our friend Lauren, the 18 yr. old who was transplanted last week is doing well! I believe her respirator was to be removed this weekend. We are so thankful for her lungs, and to see another young person have her well-deserved chance at life!!! Please remember our other friend Kristen in your prayers, as she awaits her lungs. She has been on the list since spring, and waiting can be so tedious. What a wonderful early Christmas gift a brand-new set of "breathers" would be!!! Will keep you posted on her progress.
Donovan tells me he's working on another post, so keep on checking the blog. I know everyone is far more interested in hearing from the horse's mouth, as it were. I'll also try to get a few more pics posted.
God Bless,
Beth
Thursday, October 16, 2008
What's under the sink?
Pipes!!!
And that's what Donovan is working on in the gym these days...getting some "meat" on those pipes! He was given the go-ahead to start upper body work, because it's now been over a month since the "shark bite" so he's had some time to repair those unkindly-cut muscles. Now it's all about re-building. Look out Arnie!
Had supper with Donovan, Laurier & Katie tonite, via Skype (webcam) and I have to say it's the next best thing to being there. Clear picture, great sound...when it came time for tea after our meal, I actually took out tea-cups for all of us!!! I know, I know, I'm losing it!
Some terrific news (I hope) from a friend at U of A hospital. If you remember a few weeks back I asked for prayer for a young girl named Lauren, also CF, waiting for transplant? Her mom emailed me yesterday that lungs came in for her. Her surgery was all day yesterday, and I haven't yet heard back, but I'm believing for the best for her! Please continue to pray for this wonderful family. Also, please remember Kristen...she needs lungs, and soon! Sign those donor cards, people! Thank-you!
Not too much new to report here at the homefront, just trying to get all those pre-winter chores done before the white stuff appears. I planted some bulbs for spring, emptied flower pots & am thinking about putting away the hose. Must also remember to dig up the carrots before the dog gets them. Yes, we have a carrot loving hound in the house!
I'm trying to get dates set as to when I'll get back to Edmonton, but it appears Stephen will be busy with soccer until the Second Coming...he goes with his school team to Swift Current tomorrow, and then again next weekend if they win. So, yes, it's me and Scout for the weekend.
It was wonderful to be back at Wee Care Preschool, 20 smiling faces and my terrific "boss"/friend....these little ones are a fantastic distraction and focus for life right now. Who knew that cutting out paper pumpkins, big hand over smaller one could generate such joy? I am so blessed.
Also talked with daughter Amy tonight about Christmas (speaking of the 'white stuff') shopping etc. and she said, "Well, I think we all just got our Christmas present for this year!"
And I couldn't agree more. So, under the tree this year will be Donovan, a big red bow around that impressive chest incision!
An early morning to get Stephen to that bus for Speedy Creek, so I'm off to hit the hay... and contemplate once again, God's goodness and faithfulness to us.
Hoping you'll find Him faithful in your life,
Beth
And that's what Donovan is working on in the gym these days...getting some "meat" on those pipes! He was given the go-ahead to start upper body work, because it's now been over a month since the "shark bite" so he's had some time to repair those unkindly-cut muscles. Now it's all about re-building. Look out Arnie!
Had supper with Donovan, Laurier & Katie tonite, via Skype (webcam) and I have to say it's the next best thing to being there. Clear picture, great sound...when it came time for tea after our meal, I actually took out tea-cups for all of us!!! I know, I know, I'm losing it!
Some terrific news (I hope) from a friend at U of A hospital. If you remember a few weeks back I asked for prayer for a young girl named Lauren, also CF, waiting for transplant? Her mom emailed me yesterday that lungs came in for her. Her surgery was all day yesterday, and I haven't yet heard back, but I'm believing for the best for her! Please continue to pray for this wonderful family. Also, please remember Kristen...she needs lungs, and soon! Sign those donor cards, people! Thank-you!
Not too much new to report here at the homefront, just trying to get all those pre-winter chores done before the white stuff appears. I planted some bulbs for spring, emptied flower pots & am thinking about putting away the hose. Must also remember to dig up the carrots before the dog gets them. Yes, we have a carrot loving hound in the house!
I'm trying to get dates set as to when I'll get back to Edmonton, but it appears Stephen will be busy with soccer until the Second Coming...he goes with his school team to Swift Current tomorrow, and then again next weekend if they win. So, yes, it's me and Scout for the weekend.
It was wonderful to be back at Wee Care Preschool, 20 smiling faces and my terrific "boss"/friend....these little ones are a fantastic distraction and focus for life right now. Who knew that cutting out paper pumpkins, big hand over smaller one could generate such joy? I am so blessed.
Also talked with daughter Amy tonight about Christmas (speaking of the 'white stuff') shopping etc. and she said, "Well, I think we all just got our Christmas present for this year!"
And I couldn't agree more. So, under the tree this year will be Donovan, a big red bow around that impressive chest incision!
An early morning to get Stephen to that bus for Speedy Creek, so I'm off to hit the hay... and contemplate once again, God's goodness and faithfulness to us.
Hoping you'll find Him faithful in your life,
Beth
Tuesday, October 14, 2008
Alone again, unnaturally....
Hello again from PA, where the lonely creaking of trees in the wind and the distinct absence of doggie nails clicking on the laminate floor was driving me mad last night....not too acustomed to being home alone! Glad it was only for one night.
I arrived to my very empty, forlorn house last night but picked up my pooch from his babysitter Laurie this morning...who only spoiled him a bit last week, right Laurie? I stocked up on groceries, visited my mom, marked my X on a ballot, then welcomed Stephen home from PEI around 9ish this evening. He was very happy but tired and said in his few words that they had a blast. He actually spent some money this time around, and bought home a few souvenirs. (On his last soccer trip he only bought a small tin of mints....who does he take after? Not mom!) Guess what he bought you, Donovan?...you'll have to wait till we come down there again to find out....They finished in seventh place out of 15 or 16 teams, but only lost one game, I believe. I'm not very good at stats or scores, but I know they played their hearts out, and have had a phenomenal season. I believe Ontario took the gold medal. I'll get Stephen to correct me on all the technical stuff tomorrow.
Good news from Edmonton arrived via text message from my boys at the hospital this morning....no more fluid-lowering drugs are needed, so two meds can be discontinued! (this brings us down to about a mere 28 meds) Also, ta-da! Lung function scores are on the rise again!!! FEV1 is 68% and that is very good news indeed! Laurier and Donovan also purchased a blood pressure cuff, and Donovan will take his own blood pressure daily from now on. He'll bring the results in to clinic each week. The next step, probably in a few weeks time will be for him to do his own lung function tests at home as well. He'll receive training on this from the hospital folks. Medical degree to follow in the years that come.....
More good news is that Donovan is feeling like getting out a little each day, even if only to pick up a few things at the grocery store and the like. This means he's getting stronger and the new lungs are supplying him with energy. Isn't God amazingly good to us!
Donovan's going to work on setting us up for web-cam chats on the computer. I think this will really help us not to miss each other quite so much. Once I chat with Stephen's teachers I'll figure out when we can head back to Edmonton. I think it will do these brothers a whole lot of good to spend some time with each other....
I have to mention again the generosity of so many as we have gone through this trial and triumph....I came home last night to a beautiful letter from someone in our church, totally unknown to me. I wept as read of her support in prayer as she followed our journey through the blog and updates at church. She belongs to "Mom's Morning Out" a group I was a part of for many years, and they enclosed a cheque to help us along. Thank you Carissa, your words touched my heart! And thank you so much to "Mom's" your support is so appreciated! Your prayers are our lifeline....
Sears held another bake sale for Donovan this weekend, which I'm told was a huge success. Thank you to my sisters Ghislaine & Jewel, my mother-in-law Laurentie, and all the bakers at Sears! Donovan is so appreciative of you, as we all are. The support "back home" means so much and helps him journey on each day.
I was chatting with a friend today about what this new life could mean to Donovan...school, a career, time to explore his passion for photography, who knows? I think the main thing is that these new lungs give him a chance, not a second chance, but a first chance.
Life before transplant meant treatments, drugs, rest, hospital, and so many days just not feeling well enough to do anything. He really was not able to contemplate more than the next day ahead. He didn't have the mental or physical energy to figure out what he wanted from life, or what he was interested in pusuing. How wonderful that he now will have time and energy to get that chance. We are so excited for him! Praise God for this chance!
While we thank you for all your prayers for Donovan, we ask that you continue to pray these lungs will become "one with him" ----no rejection, no infection. So far, so good!
Praise God with us that the med. schedule is now far less daunting, as are trips to the hospital. You can get used to anything after a while, it seems...
And today marks our one month and one day transplant anniversary...while we are in awe of all that has happened, we also remember our precious donor family. Please hold them in prayer as they grieve the loss of their child/sibling. Please ask God with us that they recieve an extra measure of grace and support, supernatural strength and healing to go on each day. We came so close to losing our son, I cannot imagine their grief at this time.
Well, off to bed and watch the election wind-up rhetoric. That should lull me to sleep, I'm sure!
God Bless you all,
Beth
I arrived to my very empty, forlorn house last night but picked up my pooch from his babysitter Laurie this morning...who only spoiled him a bit last week, right Laurie? I stocked up on groceries, visited my mom, marked my X on a ballot, then welcomed Stephen home from PEI around 9ish this evening. He was very happy but tired and said in his few words that they had a blast. He actually spent some money this time around, and bought home a few souvenirs. (On his last soccer trip he only bought a small tin of mints....who does he take after? Not mom!) Guess what he bought you, Donovan?...you'll have to wait till we come down there again to find out....They finished in seventh place out of 15 or 16 teams, but only lost one game, I believe. I'm not very good at stats or scores, but I know they played their hearts out, and have had a phenomenal season. I believe Ontario took the gold medal. I'll get Stephen to correct me on all the technical stuff tomorrow.
Good news from Edmonton arrived via text message from my boys at the hospital this morning....no more fluid-lowering drugs are needed, so two meds can be discontinued! (this brings us down to about a mere 28 meds) Also, ta-da! Lung function scores are on the rise again!!! FEV1 is 68% and that is very good news indeed! Laurier and Donovan also purchased a blood pressure cuff, and Donovan will take his own blood pressure daily from now on. He'll bring the results in to clinic each week. The next step, probably in a few weeks time will be for him to do his own lung function tests at home as well. He'll receive training on this from the hospital folks. Medical degree to follow in the years that come.....
More good news is that Donovan is feeling like getting out a little each day, even if only to pick up a few things at the grocery store and the like. This means he's getting stronger and the new lungs are supplying him with energy. Isn't God amazingly good to us!
Donovan's going to work on setting us up for web-cam chats on the computer. I think this will really help us not to miss each other quite so much. Once I chat with Stephen's teachers I'll figure out when we can head back to Edmonton. I think it will do these brothers a whole lot of good to spend some time with each other....
I have to mention again the generosity of so many as we have gone through this trial and triumph....I came home last night to a beautiful letter from someone in our church, totally unknown to me. I wept as read of her support in prayer as she followed our journey through the blog and updates at church. She belongs to "Mom's Morning Out" a group I was a part of for many years, and they enclosed a cheque to help us along. Thank you Carissa, your words touched my heart! And thank you so much to "Mom's" your support is so appreciated! Your prayers are our lifeline....
Sears held another bake sale for Donovan this weekend, which I'm told was a huge success. Thank you to my sisters Ghislaine & Jewel, my mother-in-law Laurentie, and all the bakers at Sears! Donovan is so appreciative of you, as we all are. The support "back home" means so much and helps him journey on each day.
I was chatting with a friend today about what this new life could mean to Donovan...school, a career, time to explore his passion for photography, who knows? I think the main thing is that these new lungs give him a chance, not a second chance, but a first chance.
Life before transplant meant treatments, drugs, rest, hospital, and so many days just not feeling well enough to do anything. He really was not able to contemplate more than the next day ahead. He didn't have the mental or physical energy to figure out what he wanted from life, or what he was interested in pusuing. How wonderful that he now will have time and energy to get that chance. We are so excited for him! Praise God for this chance!
While we thank you for all your prayers for Donovan, we ask that you continue to pray these lungs will become "one with him" ----no rejection, no infection. So far, so good!
Praise God with us that the med. schedule is now far less daunting, as are trips to the hospital. You can get used to anything after a while, it seems...
And today marks our one month and one day transplant anniversary...while we are in awe of all that has happened, we also remember our precious donor family. Please hold them in prayer as they grieve the loss of their child/sibling. Please ask God with us that they recieve an extra measure of grace and support, supernatural strength and healing to go on each day. We came so close to losing our son, I cannot imagine their grief at this time.
Well, off to bed and watch the election wind-up rhetoric. That should lull me to sleep, I'm sure!
God Bless you all,
Beth
Monday, October 13, 2008
A post from Donovan
So my mom has been nagging me to post here for a while now, so here it goes.
First of all I would like to thank everyone for their support, it has been more than we could have imagined. To know there is all that support back home is very encouraging and keeps me going each day!
So what to tell you all! Well the most popular question is "how does it feel to have "new" lungs?"
well to be honest at first (being in the ICU) I was totally baffled and confused when I woke up. It was a good few days before I understood that I had the transplant. Having missed a couple weeks it kind of all came crashing down one evening when I finally asked the question "what happened exactly???"
In the early days of post transplant it was hard to get used to breathing easier. Its hard to described exactly. So to help I guess I could described what it was like to breathe with the CF lungs.
Well the best way to described it is I only had about 30% lung function ... so when I breathed in I was only really taking a less than half breath in. When I would breathe in it was tight, noisy and usually followed by a good productive mucus-e cough. Especially at night when I was lying down I could hear myself breathing, each crackly and wheeze.
And now nothing!
It's so weird breathing now is best described as easy. To take a full breath takes only a second instead of 3 or 4. When I wake up now I'm not all plugged up and breathing shallow, my showers don't cause me to hack and throw up. It's just easier now. No more waking up an hour and a half earlier to do nebulizers and physio, no more nightly treatments before bed, I can just brush my teeth take pills and go to bed.
I have been going for pulmonary function tests (test to measure how much air my lungs can hold and how well they are working). how the test works is I breathe into a machine normally, then take the biggest possible breath in and then blow it out as fast and as long as possible. Now normally after one blow or test I would be hacking for a minute then take 2 min to catch my breath. It wasn't until last week after my 3rd or 4th time going for these test after transplant that my mom mentioned something like "hey how does it feel not to be hacking?" and I had to think about it for a few seconds until I remembered turing red and breathless after each session!
I think that about describes what it is like to have new lungs! Thank you all again for your prayers and support!
Donovan
Saturday, October 11, 2008
Going home pictures...
All smiles as we leave L'hotel U of A...which was "home" for Donovan Sept 8-Oct 6, although he wasn't really aware he was there until about Sept 14...long enough though! So happy to be at our home-away-from-home, our friend Verla's house until we return to Prince Albert, around Christmas...
The Shark Bite!
This was taken last week, and as you can see, the scar is quite impressive! It healed quite well, and the staples were removed a few days ago. The other scars are from four chest tubes inserted during the surgery to drain fluid around the lungs. The chest tubes came out slowly in the weeks following surgery. There is also another scar (not seen in this photo) on Donovan upper right thigh, from the operation to connect him to the ECMO (life-support) machine prior to surgery. The small white plastic "button" on the lower right side is a g-tube, used for connecting to a feeding tube to supplement nutrition. On Donovan's left arm is a pik-line, to access a vein for IV meds. Lots of scars, lots of reminders of this miracle! But doesn't Donny look fantastic? I think the smile and noticeable lack of oxygen tubing says everything!!!
Photos
This is Laurier with Donovan in the ICU following transplant, Sept 13. Donovan is breathing with the assistance of the respirator which was removed on Day 3. At one point there were seven I.V. pumps delivering various medications to Donovan. We had to mask, gown & glove before entering his room, not to protect Donovan, as we thought, but because Donovan had come from another hospital, and they were concerned about the possible spread of germs from there...
Friday, October 10, 2008
Look Ma, no staples...
Out they came, all 28, at our clinic visit this morning. A little pinching, but not bad. So now Donovan has a long, armipit to armpit "clamshell" reminder of his double-lung miracle! Healing very nicely, too, but he says it feels weird, because the area is numb. Must have severed nerves or something.
Taking out the stitches that closed the holes where his chest tubes were inserted was a little trickier. I guess they wanted to make sure those incisions were very tightly closed to prevent anymore air-sucking which happened with the removal of the first tube. Anyway, there was much grimacing and teeth-clenching as those came out...and that was just me!!!
Everything else went well today...saw Donovan's new x-ray, very nice indeed! No more puffy, white, clouded, scarred hard-to-read x-ray, just clear lungs! Beautiful! The doc also says he's finally happy with Donvan's blood-work. That red-cell issue is now near normal. The anti-rejection levels which will be frequently checked are fine as well.
Over supper this evening we were discussing (reminiscing, I guess) about those early post -op days in the ICU. It's interesting to hear Donny's side of things. It really took about 5 days for him to realize the surgery had actually occurred. Even after we thought he knew what was happening, he was still in Saskatoon in his mind, and actually thought things weren't going well, and that was why all the lines and monitors...so scary for him. I'm so glad it's all over!
His new computer ( a Mac, complete with newest, biggest monitor) is a wonderful distraction and activity for Donovan at this point. He's loaded tons of photos on it, and is figuring out all the various programs, also starting to email friends, make plans for when he's back home, etc. Welcome back Donovan!!!
No physio Monday, but there will still be bloodwork at 8:30 a.m.). That means we'll have to get Donovan out for a little stroll, to replace his daily treadmill, so hope we have some good weather. There are the cutest wild rabbits in the neighborhood, so maybe we'll have a bit of a photo shoot as well.
I'm starting to dread leaving on Tuesday, but will make plans to return with Stephen in early November. I hear it snowed back home, one more reason to stay here!
Think I'll still be able to plant my tulip bulbs? Shouldn't have procrastinated that when we had a few days of 23 degrees the week I was home!
Hope you all have a great weekend, and find many reasons to be thankful...
Basking in blessings,
Beth
Taking out the stitches that closed the holes where his chest tubes were inserted was a little trickier. I guess they wanted to make sure those incisions were very tightly closed to prevent anymore air-sucking which happened with the removal of the first tube. Anyway, there was much grimacing and teeth-clenching as those came out...and that was just me!!!
Everything else went well today...saw Donovan's new x-ray, very nice indeed! No more puffy, white, clouded, scarred hard-to-read x-ray, just clear lungs! Beautiful! The doc also says he's finally happy with Donvan's blood-work. That red-cell issue is now near normal. The anti-rejection levels which will be frequently checked are fine as well.
Over supper this evening we were discussing (reminiscing, I guess) about those early post -op days in the ICU. It's interesting to hear Donny's side of things. It really took about 5 days for him to realize the surgery had actually occurred. Even after we thought he knew what was happening, he was still in Saskatoon in his mind, and actually thought things weren't going well, and that was why all the lines and monitors...so scary for him. I'm so glad it's all over!
His new computer ( a Mac, complete with newest, biggest monitor) is a wonderful distraction and activity for Donovan at this point. He's loaded tons of photos on it, and is figuring out all the various programs, also starting to email friends, make plans for when he's back home, etc. Welcome back Donovan!!!
No physio Monday, but there will still be bloodwork at 8:30 a.m.). That means we'll have to get Donovan out for a little stroll, to replace his daily treadmill, so hope we have some good weather. There are the cutest wild rabbits in the neighborhood, so maybe we'll have a bit of a photo shoot as well.
I'm starting to dread leaving on Tuesday, but will make plans to return with Stephen in early November. I hear it snowed back home, one more reason to stay here!
Think I'll still be able to plant my tulip bulbs? Shouldn't have procrastinated that when we had a few days of 23 degrees the week I was home!
Hope you all have a great weekend, and find many reasons to be thankful...
Basking in blessings,
Beth
Thursday, October 9, 2008
"Now I can do handstands"
That comment was made by a very interesting 19-yr. old we met in the lab at the hospital this morning. Picture this, a very stylish "emo" type kid, tight black jeans, "indie" band t-shirt, dark black dyed hair with two red streaks over the ears, pieced eyebrow, thick silver link necklace, nails polished black, reeking of sullen "no-one understands me" attitude...get the picture? Maybe know someone like that?
He and Donovan were side by side in chairs while the "vampires" in the lab did their thing this morning. "Dave" shared that he'd been transplanted (double-lung, also CF) about 5 months ago...As he started to share his story, the goth-like trappings faded into the background, and the excitement of his new life took over. With bright eyes he stated that he'd never been able to do handstands pre-transplant, but now he can, he skips the elevators in favor of stairs, and has also gained 30 pounds! It was such an encouragement to hear this story, and it put a spring in our steps as we had long appointments and another full day at U of A.
Today an exta 5 minutes were added to treadmill time in the gym, and more strides were made on the BTE machine in occuptational therapy, a device that measures and builds strenght for tasks of daily living. Today after Donovan's afternoon nap, I suggested that perhaps I could help him downstairs where he could watch TV. He hasn't yet tried the full flight of stairs. A little later, as I was preparing supper downstairs, I turned around and there he was! He had made the trip down all by himself!
My friend Verla and I went for a long walk the other night, and spent some time in prayer in the cool autumn weather. One thing we asked God for was to relieve the diabetic symptoms that the transplant has left Donovan with. This morning, the diabetic specialist tells us she's very pleased with Donovan's sugars, and even decreased his nightly long-acting insulin. As the prednisone is decreased, we hope to also see the diabetes get better....it does in about 50% of CF transplant cases....so with a little prayer....maybe....
The "new parent" feelings I spoke of in a previous post are still with us. We got home to feed the "baby" on schedule the other day only to discover we were out of insulin, which the pharmacist forgot to retrieve from the fridge with our drug order, so had to rush right back to hospital. We try to get as much ready the night before to make it to the hospital earlier each morning, and it's coming, but still challenging to get all the meds ready, snacks etc. And today, we wasted about 15 mins. in the wrong waiting area...incorrect instructions on our daily schedule...so frustrating!
Donovan tried to post on this blog today, and got a few paragraphs down while we were watching a movie tonite, but unfortunatley a computer glitch caused him to lose the information...but keep checking in and I'm sure it'll appear soon. He also picked up his guitar for the first time since transplant today...it was sure good to hear him strum.
Tomorrow we have clinic again, and hope to hear all is well, as I'm sure it is. We look forward to a much less busy weekend, and perhaps a trip to Laurier's cousin's in the city to visit with them and also for Donovan to meet their dogs, since he misses his beloved Scout! I think a little pet therapy is in order, don't you?
And on the soccer front, we've been in touch with the PA Celtic in Charlottetown, and so far they haven't lost a game! They haven't won either...two tie games of 0-0! Perhaps tomorrow they'll see victory, amid the wind and rain...Go Stephen, Go Celtic!!!
Off to bed, have a good night everyone, God Bless...
Beth
ps. Our friend Kristen spoken of in earlier posts, sure needs a new pair of lungs. How wonderful if it would happen this weekend, or maybe tonight? Let's all pray for her....As well, Lauren, another wonderful young lady at U of A hospital, will receive a donor lobe from each of her parents in early November if lungs don't arrive by deceased donor earlier. This family needs our prayers as well. Thanks everyone!
He and Donovan were side by side in chairs while the "vampires" in the lab did their thing this morning. "Dave" shared that he'd been transplanted (double-lung, also CF) about 5 months ago...As he started to share his story, the goth-like trappings faded into the background, and the excitement of his new life took over. With bright eyes he stated that he'd never been able to do handstands pre-transplant, but now he can, he skips the elevators in favor of stairs, and has also gained 30 pounds! It was such an encouragement to hear this story, and it put a spring in our steps as we had long appointments and another full day at U of A.
Today an exta 5 minutes were added to treadmill time in the gym, and more strides were made on the BTE machine in occuptational therapy, a device that measures and builds strenght for tasks of daily living. Today after Donovan's afternoon nap, I suggested that perhaps I could help him downstairs where he could watch TV. He hasn't yet tried the full flight of stairs. A little later, as I was preparing supper downstairs, I turned around and there he was! He had made the trip down all by himself!
My friend Verla and I went for a long walk the other night, and spent some time in prayer in the cool autumn weather. One thing we asked God for was to relieve the diabetic symptoms that the transplant has left Donovan with. This morning, the diabetic specialist tells us she's very pleased with Donovan's sugars, and even decreased his nightly long-acting insulin. As the prednisone is decreased, we hope to also see the diabetes get better....it does in about 50% of CF transplant cases....so with a little prayer....maybe....
The "new parent" feelings I spoke of in a previous post are still with us. We got home to feed the "baby" on schedule the other day only to discover we were out of insulin, which the pharmacist forgot to retrieve from the fridge with our drug order, so had to rush right back to hospital. We try to get as much ready the night before to make it to the hospital earlier each morning, and it's coming, but still challenging to get all the meds ready, snacks etc. And today, we wasted about 15 mins. in the wrong waiting area...incorrect instructions on our daily schedule...so frustrating!
Donovan tried to post on this blog today, and got a few paragraphs down while we were watching a movie tonite, but unfortunatley a computer glitch caused him to lose the information...but keep checking in and I'm sure it'll appear soon. He also picked up his guitar for the first time since transplant today...it was sure good to hear him strum.
Tomorrow we have clinic again, and hope to hear all is well, as I'm sure it is. We look forward to a much less busy weekend, and perhaps a trip to Laurier's cousin's in the city to visit with them and also for Donovan to meet their dogs, since he misses his beloved Scout! I think a little pet therapy is in order, don't you?
And on the soccer front, we've been in touch with the PA Celtic in Charlottetown, and so far they haven't lost a game! They haven't won either...two tie games of 0-0! Perhaps tomorrow they'll see victory, amid the wind and rain...Go Stephen, Go Celtic!!!
Off to bed, have a good night everyone, God Bless...
Beth
ps. Our friend Kristen spoken of in earlier posts, sure needs a new pair of lungs. How wonderful if it would happen this weekend, or maybe tonight? Let's all pray for her....As well, Lauren, another wonderful young lady at U of A hospital, will receive a donor lobe from each of her parents in early November if lungs don't arrive by deceased donor earlier. This family needs our prayers as well. Thanks everyone!
Wednesday, October 8, 2008
Lung Transplant Q & A
I've gotten lots of questions about life post-transplant, so here's a little info FYI...
Q. Will Donovan's new lungs eventually get CF?
A. No, never, non, nyet!!! No, these lungs contain brand-new cells, new DNA. These new cells do not contain the defect that causes them to produce the thick, sticky goop that started all the infections in the lungs, the death knell for CF people. Yippee! No more chest physio, ever!!! The deadliest part of the disease was removed from his body when the old lungs were replaced. Isn't that cool?
Q. So, does Donovan still have CF?
A. Yes, he still has CF everywhere but his lungs. All the glands in his body that excrete (the excretory glands) will still be affected, as nothing about them changed with the surgery. That means he still has CF in his sinuses, and will need to watch out for sinus infections, he still has CF in his pancreas and has to take enzymes to digest his food, and he still excretes too much sodium in his sweat, and needs to be careful about dehydration. But we can handle all that...
Q. So, his new body has accepted the new lungs?
A. So far, so good. But rejection of any new tissue is a life-long concern. It's not only a worry in the early part after surgery. Medication for anti-rejection began in the operating room, and will continue forever. They tell us everyone has some rejection episodes, some worse than others. Donovan will do daily "flows" or breathing tests. If these trend down over time, it could mean an infection or rejection.
Q. Won't anti-rejection drugs suppress his immune system?
A. That's the idea, to fool his body into thinking these new lungs are his own by weakening the entire immune system, and lessening it's ability to fight back. These drugs will make him more susceptable to common viruses and infections, so handwashing is a first line of defense. He will need to make changes in his life such as avoiding people who are ill (don't visit with the flu!), avoiding crowded theatres, elevators and the like. This is especially important in the early stages of recovery from surgery.
Q. How many medications is Donovan on right now?
A. Adjusting to this new med. schedule is a little mind-boggling at the moment. Here's the new schedule, but it will change with each Doctor visit. Many of these meds are repeated at night, and there's a few for noon as well, but you get the idea.
8am---cipro (antibiotic)
breakfast....blood sugar test & insuling
Folate (blood builder)
enzymes (digestion)
Potassium
Valcyte (anti-viral)
Vitamin D
Adek (more vitamins)
Metoprolol (for heart beat regulation)
Cellcept (anti-rejection)
Prednisone (anti-rejection)
Magnesium (supplement)
Maxeran (nausea)
Pantaloc (stomach)
Septra (antibiotic)
Voriconazole (anti-fungal)
Lasix (for excess fluid)
Azithromycin (antibiotic)
Chrorhexadine mouth rinse (4x/day)
Cardazem (heart)
Percocet & tylenol (pain) but we're not using much
Calcium
Tacrolimus (anti-rejection)
Q. How long does it take to recover from surgery?
A. It takes about six months to a year to fully recover from double lung transplant, and that is best-case scenario. Let us remember that Donovan was anything but, going into this venture. His recovery right now, however, is best-case!!! Isn't that remarkable?
Q. Why Physio & Rehab for 2-3 months?
A. Because most people having lung transplant are weakened with the disease prior to surgery... they have had infections and been unable to live a normal life, so they need strengthening, all over. This rehab helps them to fully utilize the new lungs, and gain muscle weight back. In Donovan's case, his body was eating his muscles as a means of fuelling his body when he was so ill prior to surgery. Also, being in bed for so long weakens the entire body. Physio is going well, and strides are being made every day. Today Donny was on the treadmill for 15 minutes! Balance is also affected by the surgery, so we're working on that, as well as core strenght, hand grip strength, every muscle group head to toe gets a work out. It's exhausting, but worth it!
Q. Will Donovan ever know who his lung donor was?
A. No, there are privacy laws in Canada that prevent contact between the recipient and donor families. This is in place for the protection of all parties, but at six months we may write a letter to thank the family. I'm already formulating this letter in my head (you know me!), but really, how do you begin to thank someone for a gift so precious? Words fail me! The letter we write will be censored to make sure we don't give information that would lead to contact.
So, hope that answers a few of your questions. Feel free to ask, and we'll attempt to answer. Today we went to physio, occupational therapy, and then for an ECG and chest x-ray. Donovan's resting pulse runs into the 120's at the moment, so they're attempting to slow it so it can be challenged with exercise. Does that make sense? We're at the hospital from 8 or 9 ish till after 12 each day. Then lunch, some much needed rest, and a little time for computer or TV till supper. Sleep, repeat. I wonder what a weekend away from hospital will be like?
Blessings to all,
Beth
Q. Will Donovan's new lungs eventually get CF?
A. No, never, non, nyet!!! No, these lungs contain brand-new cells, new DNA. These new cells do not contain the defect that causes them to produce the thick, sticky goop that started all the infections in the lungs, the death knell for CF people. Yippee! No more chest physio, ever!!! The deadliest part of the disease was removed from his body when the old lungs were replaced. Isn't that cool?
Q. So, does Donovan still have CF?
A. Yes, he still has CF everywhere but his lungs. All the glands in his body that excrete (the excretory glands) will still be affected, as nothing about them changed with the surgery. That means he still has CF in his sinuses, and will need to watch out for sinus infections, he still has CF in his pancreas and has to take enzymes to digest his food, and he still excretes too much sodium in his sweat, and needs to be careful about dehydration. But we can handle all that...
Q. So, his new body has accepted the new lungs?
A. So far, so good. But rejection of any new tissue is a life-long concern. It's not only a worry in the early part after surgery. Medication for anti-rejection began in the operating room, and will continue forever. They tell us everyone has some rejection episodes, some worse than others. Donovan will do daily "flows" or breathing tests. If these trend down over time, it could mean an infection or rejection.
Q. Won't anti-rejection drugs suppress his immune system?
A. That's the idea, to fool his body into thinking these new lungs are his own by weakening the entire immune system, and lessening it's ability to fight back. These drugs will make him more susceptable to common viruses and infections, so handwashing is a first line of defense. He will need to make changes in his life such as avoiding people who are ill (don't visit with the flu!), avoiding crowded theatres, elevators and the like. This is especially important in the early stages of recovery from surgery.
Q. How many medications is Donovan on right now?
A. Adjusting to this new med. schedule is a little mind-boggling at the moment. Here's the new schedule, but it will change with each Doctor visit. Many of these meds are repeated at night, and there's a few for noon as well, but you get the idea.
8am---cipro (antibiotic)
breakfast....blood sugar test & insuling
Folate (blood builder)
enzymes (digestion)
Potassium
Valcyte (anti-viral)
Vitamin D
Adek (more vitamins)
Metoprolol (for heart beat regulation)
Cellcept (anti-rejection)
Prednisone (anti-rejection)
Magnesium (supplement)
Maxeran (nausea)
Pantaloc (stomach)
Septra (antibiotic)
Voriconazole (anti-fungal)
Lasix (for excess fluid)
Azithromycin (antibiotic)
Chrorhexadine mouth rinse (4x/day)
Cardazem (heart)
Percocet & tylenol (pain) but we're not using much
Calcium
Tacrolimus (anti-rejection)
Q. How long does it take to recover from surgery?
A. It takes about six months to a year to fully recover from double lung transplant, and that is best-case scenario. Let us remember that Donovan was anything but, going into this venture. His recovery right now, however, is best-case!!! Isn't that remarkable?
Q. Why Physio & Rehab for 2-3 months?
A. Because most people having lung transplant are weakened with the disease prior to surgery... they have had infections and been unable to live a normal life, so they need strengthening, all over. This rehab helps them to fully utilize the new lungs, and gain muscle weight back. In Donovan's case, his body was eating his muscles as a means of fuelling his body when he was so ill prior to surgery. Also, being in bed for so long weakens the entire body. Physio is going well, and strides are being made every day. Today Donny was on the treadmill for 15 minutes! Balance is also affected by the surgery, so we're working on that, as well as core strenght, hand grip strength, every muscle group head to toe gets a work out. It's exhausting, but worth it!
Q. Will Donovan ever know who his lung donor was?
A. No, there are privacy laws in Canada that prevent contact between the recipient and donor families. This is in place for the protection of all parties, but at six months we may write a letter to thank the family. I'm already formulating this letter in my head (you know me!), but really, how do you begin to thank someone for a gift so precious? Words fail me! The letter we write will be censored to make sure we don't give information that would lead to contact.
So, hope that answers a few of your questions. Feel free to ask, and we'll attempt to answer. Today we went to physio, occupational therapy, and then for an ECG and chest x-ray. Donovan's resting pulse runs into the 120's at the moment, so they're attempting to slow it so it can be challenged with exercise. Does that make sense? We're at the hospital from 8 or 9 ish till after 12 each day. Then lunch, some much needed rest, and a little time for computer or TV till supper. Sleep, repeat. I wonder what a weekend away from hospital will be like?
Blessings to all,
Beth
Monday, October 6, 2008
The Homecoming....
I just read an email from a friend whose daughter just had a new baby girl. Got me thinking about having my kids, especially the joy of finally bringing that baby home from hospital, and feeling that, at that point, the new little one finally becomes all yours, your new baby.
Well, today at about 6:30 p.m. I bought my 20-yr old 5'9" 123lb. "baby" boy from the hospital, complete with all ten fingers and toes and a brand new pair of lungs! What a celebration! I hope to provide you loyal readers with photos at some point. Thankfully, unlike that homecoming of all those years ago, he now sleeps thru the night (with a little pharmaceutical aid), and feeds on schedule, to keep those blood sugars stable.
Donovan walked tentatively into our friend's back door to avoid those difficult to navigate front steps. He's using a cane for balance, and a four-wheeled "friend" for longer distances. He is now much less high tech, as the last of the lines came out today, the pik-line into his bicep for IV meds was removed before we left hospital. I've got to tell you, it was like watching one of those magic shows removing the line, like a scarf trick! That line went on and on and on....it makes sense, because it went from his arm all the way to his heart....
We also came home with four big bags of meds from pharmacy...and a looooong list of instructions. We've got two pages of meds to check off, and changes will be made as he stabilizes even more. He really is looking well. One of the meds, prednisone is giving him some fullness in the face, making him look even more healthy!
We will return to hospital 5 days a week for physio and clinic checks, and will really be keeping a close eye on everything. Lots and lots of learning to do, but it is all worth every moment. It was so nice just to watch Donovan hang out on the sofa, open mail, and watch a movie on his new computer. Great to be home in Edmonton!
I flew in last night with my sister Ghislaine, who leaves tomorrow. She gave Donovan gifts from Sears, where he worked for a year...a digital photo frame and a collection of money toward expenses. Thanks so much, all you angels at Sears! Your support means so much. Donovan is touched by these expressions, and they are all helping his emotional recovery from this ordeal.
I also have to mention how wonderful and supportive our home church, Prince Albert Alliance Church, has been. I attended Sat. evening while I was home, and my friend Jackie, leading worship that evening called me to the front to give an update, unplanned. Now, anyone who knows me knows that I rate public speaking right up there with dental surgery!!! But I stumbled through, and then came a little more prepared to speak Sunday morning. I really hope, for those of you who were at church, that I was able to articulate a little of what this has all meant to us, how God has really been our Rock, and how your prayers have seen us through. Pastor Ron informed me then that the congregation took up a "love offering" for our transplant-related expenses. It truly blessed my socks off!!! Thank you, church family, thank you God!
These blessings will help us all breathe a little easier while Donovan's new breathers learn to do their thing, and become one with him! I was mentioning to a friend that since God's timing has been so immaculate through this, it wouldn't surprise me if the financial donations from all sources equalled Laurier's lost salary down to the cent. God is so faithful, as are you, my friends.
On that note, I've received a few inquiries as to where people can give donations...and although this is awkward to speak about, I think the simplest thing to do is give them to us directly. Again, thanks a million for the financial support, and trust we will "pay it forward" when the opportunity arises...none of know who will be in a position similar to our's one day....
Stephen will be in Charlottetown, PEI with the PA Celtic, right about now. If you happen to think of him in the next week, as we will be constantly, say a few prayers for protection, fair reffing, good weather and some darn good fun! Go Celtic!!!
It has been a long, good day. Off to bed, and hopefully a better planned day with an earlier bedtime tomorrow. We really need to be on schedule with eating & sleeping, just like with a new baby...not to mention working in close to 30 meds. We ask that you pray for adjustment for Donovan to this new routine.
Let's praise God for this wonderful victory, 23 days post-transplant, home, new lungs chugging away....we are so thankful.
Proud parents,
Beth and Laurier
Well, today at about 6:30 p.m. I bought my 20-yr old 5'9" 123lb. "baby" boy from the hospital, complete with all ten fingers and toes and a brand new pair of lungs! What a celebration! I hope to provide you loyal readers with photos at some point. Thankfully, unlike that homecoming of all those years ago, he now sleeps thru the night (with a little pharmaceutical aid), and feeds on schedule, to keep those blood sugars stable.
Donovan walked tentatively into our friend's back door to avoid those difficult to navigate front steps. He's using a cane for balance, and a four-wheeled "friend" for longer distances. He is now much less high tech, as the last of the lines came out today, the pik-line into his bicep for IV meds was removed before we left hospital. I've got to tell you, it was like watching one of those magic shows removing the line, like a scarf trick! That line went on and on and on....it makes sense, because it went from his arm all the way to his heart....
We also came home with four big bags of meds from pharmacy...and a looooong list of instructions. We've got two pages of meds to check off, and changes will be made as he stabilizes even more. He really is looking well. One of the meds, prednisone is giving him some fullness in the face, making him look even more healthy!
We will return to hospital 5 days a week for physio and clinic checks, and will really be keeping a close eye on everything. Lots and lots of learning to do, but it is all worth every moment. It was so nice just to watch Donovan hang out on the sofa, open mail, and watch a movie on his new computer. Great to be home in Edmonton!
I flew in last night with my sister Ghislaine, who leaves tomorrow. She gave Donovan gifts from Sears, where he worked for a year...a digital photo frame and a collection of money toward expenses. Thanks so much, all you angels at Sears! Your support means so much. Donovan is touched by these expressions, and they are all helping his emotional recovery from this ordeal.
I also have to mention how wonderful and supportive our home church, Prince Albert Alliance Church, has been. I attended Sat. evening while I was home, and my friend Jackie, leading worship that evening called me to the front to give an update, unplanned. Now, anyone who knows me knows that I rate public speaking right up there with dental surgery!!! But I stumbled through, and then came a little more prepared to speak Sunday morning. I really hope, for those of you who were at church, that I was able to articulate a little of what this has all meant to us, how God has really been our Rock, and how your prayers have seen us through. Pastor Ron informed me then that the congregation took up a "love offering" for our transplant-related expenses. It truly blessed my socks off!!! Thank you, church family, thank you God!
These blessings will help us all breathe a little easier while Donovan's new breathers learn to do their thing, and become one with him! I was mentioning to a friend that since God's timing has been so immaculate through this, it wouldn't surprise me if the financial donations from all sources equalled Laurier's lost salary down to the cent. God is so faithful, as are you, my friends.
On that note, I've received a few inquiries as to where people can give donations...and although this is awkward to speak about, I think the simplest thing to do is give them to us directly. Again, thanks a million for the financial support, and trust we will "pay it forward" when the opportunity arises...none of know who will be in a position similar to our's one day....
Stephen will be in Charlottetown, PEI with the PA Celtic, right about now. If you happen to think of him in the next week, as we will be constantly, say a few prayers for protection, fair reffing, good weather and some darn good fun! Go Celtic!!!
It has been a long, good day. Off to bed, and hopefully a better planned day with an earlier bedtime tomorrow. We really need to be on schedule with eating & sleeping, just like with a new baby...not to mention working in close to 30 meds. We ask that you pray for adjustment for Donovan to this new routine.
Let's praise God for this wonderful victory, 23 days post-transplant, home, new lungs chugging away....we are so thankful.
Proud parents,
Beth and Laurier
Friday, October 3, 2008
Are you sitting down???
Ta-da...we have a discharge date...Monday, October 6th! If everything goes as planned, that is. And of course it will. I'm joining my boys on Sunday Oct 5th, so I will be able to escort Donovan to his home for the next couple of months. Can't wait. How amazing is this news...? well, let's remember that Donovan's recovery was "supposed" to be proportionate to the condition he was in when he went into surgery...not good at all...he is continuing to defy all the odds! Being discharged 23 days post-surgery is astounding! It is best-case-scenario!
While we are speaking of good news...I like numbers. Take 7 for instance. For a white cell count? I'd call that perfectly normal. I've been waiting to hear that kind of number. It means no infection. How's 5 p.m.? That's the time of day it was before Donovan required pain medication today. Let's remember not 3 weeks ago his chest was opened much like the hood of a car....How's 50% ? That the improvement in even more of his strength exercises as measured by the machines in the physio gym....
A good day once again, and I hope you're not getting tired of hearing that, because I intend to keep on chronicling good days on this journey of hope. I'm so happy to hear that Laurier and Donovan took advantage of our lovely weather and had supper together at a picnic table outside the hospital. You facebookers may also note that Donovan changed his "status" so he's up and at 'em on the computer too. His friend Chantal is visiting for the weekend, thanks girlie, you're awesome!
On the medical front, there was teaching from dietary, and it was decided to discontinue Donovan's nightly tube feedings as there is risk of reflux entering his shiny, new lungs and causing damage there. We wouldn't want that! This means he'll have to consume tons of food during the day to help gain back lost weight, and to keep weight on, something Donovan's not been terribly good at over the years. However, he'll no longer be using so many calories struggling to breathe and fight infection. So, we'll see how this goes....
There's also been teaching on measuring blood sugar and administering insuling. It remains to be seen if Donovan will continue to be diabetic once he recovers. If he is, we'll just deal with it. Small price to pay for a new life!
Last night Donovan slept great, and he also had a good nap today. I guess they've got that insomnia side-effect under control. They woke him to go to a shower, get this, a stand-up shower! Yesterday & today! That's progress...no chair in the shower.
And I have had a wonderful week at home. The days have slipped by as I've shared our miracle with so many friends and family. I've had 3 lunch dates (no problem gaining back lost pounds here) and even gone back to preschool to visit the little ones. I've missed work so much! Great to see you, everyone!
I've also been overwhelmed by the generosity of my community. The pediatric ward here, which has been home to Donovan about a hundred times over the years, (he's been a patient many times since 'graduating' officially from pediatrics) took up a collection among staff, and presented me with a beautiful card and cheque. The level 3 nurses at the Victoria hospital are some of the most caring, dedicated professionals I've met in our multi-hospital journey with our son. They are angels and all deserve raise!
A co-worker donated her hours of work subbing for me and gave me cheque as well. I won't mention her name, but she is a truly special person, and I am so touched! Have I told you I have the best job in the world? and Laurie, you are the world's best boss. Your support means everything, as do your hugs! Thank you to Lynda and Debbie D. for lovely gifts also, you are incredibly thoughtful...and I'm thoroughly spoiled! My garden and plants are green and flowering and looking lovely. My lawn is cared for! my tomatoes are canned! You are all angels and I thank you from the bottom of my heart. Did you know Park Avenue is the best place to live? (Better than that other more well-known Park Ave)!
I also want to mention those who have simply listened as we have told and re-told both the scary and joyful moments on this journey. It's been so similar to a new mom who has the need to express the profound emotions endured during labor and birth. For me, both writing and talking have helped so much to work through the incredible scope of emotions I've undergone in the last month. Thanks for reading, thanks for being there...you are more than therapists!
More heart-warming news...Tonight Stephen's soccer team walked the red carpet before our local Raiders hockey game, and Stephen as well as a girl from the other team heading to Nationals were chosen to drop the puck before the game. I was so proud! When I mentioned how thrilling this was, coach Clark said "It's for Donovan" Awww, Thanks Team!!!
It's been a rocky road, but every gesture of kindness has been a hand up when we've fallen.
Here's hugs to all....until next time,
Beth
While we are speaking of good news...I like numbers. Take 7 for instance. For a white cell count? I'd call that perfectly normal. I've been waiting to hear that kind of number. It means no infection. How's 5 p.m.? That's the time of day it was before Donovan required pain medication today. Let's remember not 3 weeks ago his chest was opened much like the hood of a car....How's 50% ? That the improvement in even more of his strength exercises as measured by the machines in the physio gym....
A good day once again, and I hope you're not getting tired of hearing that, because I intend to keep on chronicling good days on this journey of hope. I'm so happy to hear that Laurier and Donovan took advantage of our lovely weather and had supper together at a picnic table outside the hospital. You facebookers may also note that Donovan changed his "status" so he's up and at 'em on the computer too. His friend Chantal is visiting for the weekend, thanks girlie, you're awesome!
On the medical front, there was teaching from dietary, and it was decided to discontinue Donovan's nightly tube feedings as there is risk of reflux entering his shiny, new lungs and causing damage there. We wouldn't want that! This means he'll have to consume tons of food during the day to help gain back lost weight, and to keep weight on, something Donovan's not been terribly good at over the years. However, he'll no longer be using so many calories struggling to breathe and fight infection. So, we'll see how this goes....
There's also been teaching on measuring blood sugar and administering insuling. It remains to be seen if Donovan will continue to be diabetic once he recovers. If he is, we'll just deal with it. Small price to pay for a new life!
Last night Donovan slept great, and he also had a good nap today. I guess they've got that insomnia side-effect under control. They woke him to go to a shower, get this, a stand-up shower! Yesterday & today! That's progress...no chair in the shower.
And I have had a wonderful week at home. The days have slipped by as I've shared our miracle with so many friends and family. I've had 3 lunch dates (no problem gaining back lost pounds here) and even gone back to preschool to visit the little ones. I've missed work so much! Great to see you, everyone!
I've also been overwhelmed by the generosity of my community. The pediatric ward here, which has been home to Donovan about a hundred times over the years, (he's been a patient many times since 'graduating' officially from pediatrics) took up a collection among staff, and presented me with a beautiful card and cheque. The level 3 nurses at the Victoria hospital are some of the most caring, dedicated professionals I've met in our multi-hospital journey with our son. They are angels and all deserve raise!
A co-worker donated her hours of work subbing for me and gave me cheque as well. I won't mention her name, but she is a truly special person, and I am so touched! Have I told you I have the best job in the world? and Laurie, you are the world's best boss. Your support means everything, as do your hugs! Thank you to Lynda and Debbie D. for lovely gifts also, you are incredibly thoughtful...and I'm thoroughly spoiled! My garden and plants are green and flowering and looking lovely. My lawn is cared for! my tomatoes are canned! You are all angels and I thank you from the bottom of my heart. Did you know Park Avenue is the best place to live? (Better than that other more well-known Park Ave)!
I also want to mention those who have simply listened as we have told and re-told both the scary and joyful moments on this journey. It's been so similar to a new mom who has the need to express the profound emotions endured during labor and birth. For me, both writing and talking have helped so much to work through the incredible scope of emotions I've undergone in the last month. Thanks for reading, thanks for being there...you are more than therapists!
More heart-warming news...Tonight Stephen's soccer team walked the red carpet before our local Raiders hockey game, and Stephen as well as a girl from the other team heading to Nationals were chosen to drop the puck before the game. I was so proud! When I mentioned how thrilling this was, coach Clark said "It's for Donovan" Awww, Thanks Team!!!
It's been a rocky road, but every gesture of kindness has been a hand up when we've fallen.
Here's hugs to all....until next time,
Beth
Wednesday, October 1, 2008
Amazing Grace....
How often have I heard that old hymn, yet never really knew the meaning of "grace".....
I think I am beginning to have an inkling of what it means to really have received undeserved favor from God. As I have experienced the power of God at work in our lives through this time with Donovan I have also felt peace that passes understanding, something else I have rarely truly understood. Having had a little distance from Edmonton this week I've had time to ponder the wonder of all that we have been through, and wrestle with the idea that God poured out blessing on us...we are immensely humbled and grateful, but I still have this need to say "Why God, why now, why Donovan, why us?" Of course, the answer is very simple...."why not? I love you!" Something deep within me has changed, and I know I will never be the same. We can never be thankful enough, never deserving enough, I guess all we can do is live our lives to be a reflection of all we have received...and that will encompass all the days we have left....
As I returned home this week I also heard the devastating news of a traffic accident that claimed the lives of two relatives of friends in our local congregation. It is bewildering at the very least to hear of such loss, and feel such agony for these families, and on the other hand rejoice at the new life we've been given. All we can know is that God is in this with all of us, and feels the pain as well as the joy. All we can know is His love and His sovereignty, even when we don't understand....all we can do is continue to uphold each other, be Jesus for each other, "Be still and know that I am God".
In the midst of all my muddling things over today, I got a phonecall from Laurier who had returned to the place he's staying midday, which is a little unusual. After chatting a moment, he passed the phone over, saying "Here, someone wants to say hello" Well, imagine my shock when that "someone" was none other than Donovan! Out on a pass!!! Woo-hoo! He said the steps to the house were a little difficult to navigate, but he was enjoying a taste of freedome. I'm so thankful for our Indian summer...and a chance for him to take it all in. He continues to work extremely hard in physio, and apparently his calf muscles are in desperate need of a tune-up. Exercises are rated on a scale of 1-10, and he flunked "calf strength" with flying colors! But we know it will come....as will eventual discharge. Another day with 3 patients in a 2-patient room, and I'm sure Donovan is at least beginning to look too healthy to take up space on the ward!
Impatient as usual, I'm still waiting to hear the antibiotics are discontinued, but so far only one has been changed to an oral med, and I still haven't heard how red blood cell production is going...it's so hard being this far away, and not able to pester the medical people in person. Of course neither Laurier or Donovan is as information-oriented as me!!!
Soccer nationals for Stephen are only a few sleeps away and this week is very busy in preparation. A lovely banquet tonight to cheer the boys on, and motivate them to bring home some 'hardware'....we're so proud of Stephen and his whole team, who are working incredibly hard. Stephen's never been to Eastern Canada, so is in for a real treat. Of course there will be more soccer than sight-seeing, but never-the-less, quite an opportunity! And well deserved, as the next few early mornings as well as afternoons are spent in training....ugh, 7:30 a.m. running!
I look forward to seeing Amy home tomorrow evening...anybody want to buy her '91 Shadow? She's found herself a snazzy little Jetta to consume her paychecks for the next few years! She's bringing the old car home to buff up and put up for sale.
Well, that's life today. Off to tuck my young man in to bed, or at least start the nagging!
Love and prayers,
Beth
I think I am beginning to have an inkling of what it means to really have received undeserved favor from God. As I have experienced the power of God at work in our lives through this time with Donovan I have also felt peace that passes understanding, something else I have rarely truly understood. Having had a little distance from Edmonton this week I've had time to ponder the wonder of all that we have been through, and wrestle with the idea that God poured out blessing on us...we are immensely humbled and grateful, but I still have this need to say "Why God, why now, why Donovan, why us?" Of course, the answer is very simple...."why not? I love you!" Something deep within me has changed, and I know I will never be the same. We can never be thankful enough, never deserving enough, I guess all we can do is live our lives to be a reflection of all we have received...and that will encompass all the days we have left....
As I returned home this week I also heard the devastating news of a traffic accident that claimed the lives of two relatives of friends in our local congregation. It is bewildering at the very least to hear of such loss, and feel such agony for these families, and on the other hand rejoice at the new life we've been given. All we can know is that God is in this with all of us, and feels the pain as well as the joy. All we can know is His love and His sovereignty, even when we don't understand....all we can do is continue to uphold each other, be Jesus for each other, "Be still and know that I am God".
In the midst of all my muddling things over today, I got a phonecall from Laurier who had returned to the place he's staying midday, which is a little unusual. After chatting a moment, he passed the phone over, saying "Here, someone wants to say hello" Well, imagine my shock when that "someone" was none other than Donovan! Out on a pass!!! Woo-hoo! He said the steps to the house were a little difficult to navigate, but he was enjoying a taste of freedome. I'm so thankful for our Indian summer...and a chance for him to take it all in. He continues to work extremely hard in physio, and apparently his calf muscles are in desperate need of a tune-up. Exercises are rated on a scale of 1-10, and he flunked "calf strength" with flying colors! But we know it will come....as will eventual discharge. Another day with 3 patients in a 2-patient room, and I'm sure Donovan is at least beginning to look too healthy to take up space on the ward!
Impatient as usual, I'm still waiting to hear the antibiotics are discontinued, but so far only one has been changed to an oral med, and I still haven't heard how red blood cell production is going...it's so hard being this far away, and not able to pester the medical people in person. Of course neither Laurier or Donovan is as information-oriented as me!!!
Soccer nationals for Stephen are only a few sleeps away and this week is very busy in preparation. A lovely banquet tonight to cheer the boys on, and motivate them to bring home some 'hardware'....we're so proud of Stephen and his whole team, who are working incredibly hard. Stephen's never been to Eastern Canada, so is in for a real treat. Of course there will be more soccer than sight-seeing, but never-the-less, quite an opportunity! And well deserved, as the next few early mornings as well as afternoons are spent in training....ugh, 7:30 a.m. running!
I look forward to seeing Amy home tomorrow evening...anybody want to buy her '91 Shadow? She's found herself a snazzy little Jetta to consume her paychecks for the next few years! She's bringing the old car home to buff up and put up for sale.
Well, that's life today. Off to tuck my young man in to bed, or at least start the nagging!
Love and prayers,
Beth
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