That was Donovan's pulmonary function results today, his highest yet, and very blog-worthy! Perhaps his lungs are celebrating, along with the rest of us, that he is now out of hospital, after a whopping 42 days as an in-patient to treat his fungal infection. We got the walking papers on Friday afternoon. What a huge relief! We still need to go in to the hospital each weekday morning for bloodwork, x-rays, doc visits, physio etc.. so this means early mornings, but it's still waaaaay better than being an inpatient.
We won't know if the fungus is irradicated until the next CT in a week, but we are hopeful. Donovan continues to do anti-fungal treatment by inhalation and oral meds and the effects of the IV treatment are slowly dissipating. So, we hung out here this weekend, walked the dog, watched a movie, and for the first time since before transplant, Donovan was able to attend church on Sunday morning. What a huge blessing! We also visited Al's aquarium supply store to scout out fish for the tank here....much better shopping than what we have at home. It was great to have such an ordinary weekend....don't think I thought about hospital once!
Turns out the treatment of a lung fungus is rather costly. We learned upon picking up drugs at pharmacy that the province of Sask (cheapskates that they are), is choking on the $1000/5-day cost of only one of Donovan's drugs. The inhaled ampho is also waaaay up there cost-wise. It's a good thing Donovan is worth every cent (most days, ha ha) ..... add all this to the cost of his regular CF drugs, the cost of surgery and hospitalization, and I'm sure he is worth millions! It may be a hassle to have some of these drugs covered by our province when he is finally discharged there, so we need prayer for this
Well, with 6-ish wake up this morning, I'm in need of a nap....take care all!
love,
Beth
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